Kuala lumpur: Malaysia will enhance regional cooperation to address rare diseases, focusing on establishing an ASEAN declaration and shared database to expedite diagnosis and improve treatment access. Health Minister Datuk Seri Dzulkefly Ahmad announced the initiative, which will be presented at the ASEAN Health Ministers Meeting through a proposed ASEAN Declaration on Rare Diseases. This aims to coordinate joint action among member states.

According to BERNAMA News Agency, Dzulkefly emphasized the importance of this collaboration due to the high costs associated with treating rare diseases, particularly in terms of specialized medicines and medical equipment. This initiative will enable ASEAN countries to collaborate on the procurement of medicines and costly medical equipment, ensuring more efficient and equitable access to treatment for patients.

Dzulkefly also mentioned that Malaysia will develop a rare disease registry database to facilitate data sharing with ASEAN partners and the international community. This effort is expected to help accelerate diagnosis, as diagnosing some rare diseases can take up to 10 years, delaying appropriate treatment. A shared database could significantly shorten diagnosis timelines and improve treatment outcomes.

He further stressed the necessity of supporting caregivers, acknowledging that the burden of care often extends beyond patients to their families. Support initiatives, including strengthening care systems and providing moral support, will continue to be enhanced as part of a comprehensive approach.

On February 4, Dzulkefly launched the National Policy on Rare Diseases to strengthen Malaysia's healthcare ecosystem in managing such conditions in a more structured and sustainable manner. Approximately 12,000 patients, covering nearly 500 types of rare diseases, are currently receiving treatment at government hospitals nationwide.